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Increasingly Difficult to Accept Peripheral Neuropathy
Neuropathy | Last Active: Aug 27, 2023 | Replies (163)Comment receiving replies
Hello,
I have recently been diagnosed with PN and I am in pain all day. I don't have any specific diagnosis yet. MRI scheduled for this Friday. The cold has also increased my pain level, and I am getting about 4-5 hours ""sleep". I have no idea what is causing most of my body to have these terrible sensations The other thing is that there seems to be no cure. We have to find ways of managing the pain, and psychological troubles. It is certainly not easy, and there seems to be no help. We do have to journey through life on our own, but it would helpful if people could hear how we are suffering. There are support groups. Some of them have Zoom meetings. It is a tough one...oh, I am 70 years old.
Replies to "Hello, I have recently been diagnosed with PN and I am in pain all day. I..."
In reply to @pacodennis Have your ever used cipro or any other antibiotic of the fluoroquinolones family if you can recall.
I understand these antibiotics are known for their serious long lasting if not permanent side effects encompassing symptoms ranging from psychiatric and sensory disturbances to problems with muscles, tendons and nerves that continue after people have stopped taking the drugs. They call it being 'floxed'
Good morning,
I am sorry to hear you have been diagnosed with neuropathy, it is a very challenging disorder. I understand your pain and frustration. I find that I have good days and bad days and when I have a good day I thank God and take full advantage of it, I am out enjoying life.
Diet plays an important part of pain management, limiting sugars and carbs is important! It has been suggested that high protein diets often help ease the pain caused by neuropathy. I also suggest eliminating any alcohol use. Stress management is also recommended, perhaps a walk in a local park to enjoy the fall colors and smells. Exercise is also a very important piece that decreases the pain. Please continue to see your healthcare provider and participate in your care management.
Please know you are not on your own with this challenging disease, we the many that have some type of neuropathy are there with you. Please stay in contact.
Kim
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I am 65 my pn is in the feet and lower legs presumably you are same? It is a lonely journey as I feel that nobody really listens or particularly cares this is what makes it so awful. I spend days just laying down. I swim but that's not what it used to be and I find myself more like a beginner in the pool I am so slow now. This pn is no joke is it and what the hell are we supposed to do? There has to be a reason and cause and that in turn should be remedied that's how I see it. I am sure if we were famous it would be cured or at least remedied in some way to ease the pain.