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Diagnosed with DCIS: How do I decide on treatment?

Breast Cancer | Last Active: Mar 20 10:00am | Replies (345)

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@paddyo

Hello - I was interested in your story, as I had a lumpectomy 2019 age 73 with nodes evaluated (no involvement in nodes), HER 2 positive. The recommendation to me was Aromatase for 5 yrs minimum; however, I will never forget the Radiation Onco Dr saying “You don’t kill a chicken with a nuclear bomb.” - and I understood this as meaning radiation not recommended. I have not had radiation. Later, as I was struggling with the effects of Aromatase Inhibitors (switched to Exemestane still very difficult side effects) I found in some original documents the phrase “Patient refused radiation”. I felt a gut punch, as I understood the physician to say ‘not necessary’. I’ve been second-guessing ever since and if I’d understood better I would have opted for both radiation & Aromatase regimen - kind of like extra insurance against recurrence.
Just one story, but definitely go for second opinion plus get someone to go over every word of dx, surgery report, and treatment info so you get a complete understanding of that with which you are dealing - as I see so many here have when they detail their own progress. Best of luck!

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Replies to "Hello - I was interested in your story, as I had a lumpectomy 2019 age 73..."

Oh, that's disturbing and I would be as perplexed and dismayed as you if that happened to me.

My current rule of thumb when talking to doctors is to assume they are toddlers with a short attention span. I tell them what I'm going to tell them. Then I tell them. And before I leave the office, if I have any reason to doubt the quality of the communication, I remind them what I told them. The odds are that at least one of those three recitations was heard.

And I question any statements they make if I have even a tiny doubt that I understood it perfectly. I think people are just so busy now, and multitasking so much, that miscommunication is alarmingly common...