Connect
← Return to Just diagnosed with pancreatic NET stage 1
Discussion
Just diagnosed with pancreatic NET stage 1
Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)Comment receiving replies
Welcome @kt348. Finding out that you have cancer sends one into a tailspin. It's so hard to make decisions about when and what to do when the answers are clear cut. I can only imagine your fear and devastation.
To help you connect with others, like @sturns @elm60 @dbmenger @musicflowers4u @kaforester3, who also have pancreatice neuroendocrine tumors, I added your discussion to the Neuroendocrine Tumors group as well as the Pancreatic Cancer group.
It sounds like the tumor was found incidentally while getting a CT scan for something else. This helped your team find it early while it is still stage 1. That's good. Given that it is 1cm in size, well sectioned, slow growing, it sounds like you made a good decision with all the information available to you.
Are you being seen by a NETs specialist? Would you feel more comfortable with your decision if you got a second opinion?
Replies to "Welcome @kt348. Finding out that you have cancer sends one into a tailspin. It's so hard..."
Connect
Hi there. I hope you are keeping well. I also have a NET in the tail of my pancreas. It is 1.7 cm. My NET Doctor is telling me it is too risky or hard to do a biopsy in the tail but I see you were able to have one done. Did they ever tell you it was quite risky or does it seem like common practicee? This “risky” comment was feedback from the NET oncologist. What type of doctor is the one who performs the biopsy? Thank you so much .