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Does Small Fiber Neuropathy always start in the feet?
Neuropathy | Last Active: Oct 19, 2022 | Replies (10)Comment receiving replies
Hi @raepent1, I know from your posts you've done a lot of research on your own. I'm not a doctor or medical expert but I'm pretty sure doesn't always have to start in the feet. Mine did more than 20 years ago but only numbness and it actually started at the tips of the toes if I remember right. I'm not sure if you have run across any YouTube videos by Matthew B. Jensen who is an Assistant Professor of Neurology, University of Wisconsin. He does an excellent job of explaining in laymen's terms a lot of neuropathy topics. I first learned about him through this video that gives a good explanation of how the different neuropathies are diagnosed.
Approach to neurological syndromes - https://youtu.be/3FrQ7Glvgok
He has quite a few videos on neurology that you might find helpful for learning more on his YouTube channel here - https://www.youtube.com/channel/UCJaXGRxxjnF2mvLiOFmmHLQ
Replies to "Hi @raepent1, I know from your posts you've done a lot of research on your own...."
John - just looked at the video on Polyneuropathy which is my dx and you are right, he explains things clearly and in simple terms. My neuropathy actually started in 2007-08 in tips of toes and had the feeling of cotton balls stuck on bottom of toes with slight numbness. I looked at just one video so far and have learned a lot. Thanks for posting the info. Ed
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Thank you so much for those links! I haven’t heard of him or even ventured into YouTube in my quest for random answers (although it seems to be my go-to source for household how-to’s, so why wouldn’t I haven’t I thought of that before!?)
I’m 41 years old & it’s like I was on the edge of turning 40 and then my “middle-aged” life started or so I thought. It’s been like unraveling a ball of yarn, one finding leads to the next, to the next etc. and it’s so crazy because some of these symptoms that occurred, I’ve actually had them since childhood, just never had tests.
So when this SFN thing turned into a possible diagnosis, I was just so bewildered why my neurologist referred me out, when most articles state it’s diagnosed by a Neuro- lucky me, my neurologist doesn’t do that procedure. Apparently it’s another unicorn in my sky, as has been a lot of other things over the course of all this. Rare and Uncommon are all too common in my book.
Thank you again so much!!!