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Leiomyosarcoma: What can I expect now?

Sarcoma | Last Active: Feb 27 11:42am | Replies (59)
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@marys1956

I was diagnosed with peritoneal Leiomyosarcoma in August 2022. Sept had surgery to remove (most) tumor and repair damage to areas tumor stuck to. Have experienced post-surgery complications. Chest port is being placed end of this week, then chemo treatments. Nodules on right lung and liver. Leiomyosarcoma is Stage 4. Happy to follow you all.

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Replies to "I was diagnosed with peritoneal Leiomyosarcoma in August 2022. Sept had surgery to remove (most) tumor..."
Teresa, Volunteer Mentor | @hopeful33250 | Oct 17, 2022

Hello @marys1956,

I appreciate you sharing more about your journey with Leiomyosarcoma.

You mentioned in your profile that your mother was prescribed diethylstilbestrol (DE.S.) while pregnant with you. I'm wondering if your doctors know if there is a connection between the DES and your cancer history.

Has your oncologist shared with you the type of chemo you will have?

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futureperfect | @futureperfect | Jan 9, 2023

Hi, @marys1956, I was diagnosed with 4B LMS in June 2022 and am in chemo also. Thanks for sharing your experience. I hope you are doing well.

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