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Non-Length Dependent Small Fiber Neuropathy

Neuropathy | Last Active: Apr 18 7:03pm | Replies (131)
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@jemock

Anybody in here with this diagnosis? I’ve been living it for over 11 years. It’s pretty much wrecked me. The neurologist that diagnosed me told me on that first day “This is probably not gonna kill you, but it’s gonna make you miserable. You need to go find a good pain clinic.” He was totally correct. I have tried everything that can be tried to help. No help. It’s only by the grace of God that I haven’t killed myself.

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Replies to "Anybody in here with this diagnosis? I’ve been living it for over 11 years. It’s pretty..."
Amanda Roe | @amandajro | Oct 17, 2022

Hello @jemock. Nerve pain is undoubtedly trying, as you well know, given that many pain medications don't even address it.

Before I go on, you will notice that I have moved your post into an existing discussion on this same topic, which you can find here:
- Non-Length Dependent Small Fiber Neuropathy: https://connect.mayoclinic.org/discussion/non-length-dependent-small-fiber-neuropathy/

Did you ever try care from a pain clinic?

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