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Limited Scleroderma or CREST Syndrome: What helps?

Autoimmune Diseases | Last Active: Jul 25 9:13am | Replies (80)
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@veegee

I have Crest syndrome including call the letters. I'm especially concerned with my weight loss. Does it ever stop. I was diagnosed in 2017 but didn't really start showing any active symptoms probably a couple years later here I have lost close to 100 lb. Is this a norm?

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Replies to "I have Crest syndrome including call the letters. I'm especially concerned with my weight loss. Does..."
Colleen Young, Connect Director | @colleenyoung | Oct 17, 2022

Welcome, @veegee. I moved your question about CREST and weight loss to this existing discussion:
- Limited Scleroderma or CREST Syndrome: What helps? https://connect.mayoclinic.org/discussion/crest-syndrome/

I did this so you can read previous posts and connect easily with fellow members like @shasmith @calizona62 @fracturedd @1corinthians926 @punky1973 @moselurl @paulinechavez1 @marye2, who can share their experiences.

Even if you try your best to eat a healthy diet, people who suffer from scleroderma are at increased risk of malnutrition. Malnutrition in scleroderma is either caused by inadequate intake of nutritious foods or from poor absorption of nutrients from the gastrointestinal (GI) tract.

Are you eating less due to eating issues like difficulty chewing and swallowing? Or are you eating well, but the weight loss may be poor absoption?

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