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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

Chronic Pain | Last Active: Apr 2 2:07pm | Replies (305)

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@iiirenek

Hello, I am posting for my father 57M. For over 16 years he has been dealing with chronic pain in his right mid-upper abdomen. Pain is severe, can be a 10/10 certain days. Causes insomnia and can be made worse from eating. He has had a gastric bypass with a supplemental surgery a few years later. He has had his appendix and gallbladder removed. Despite years of trips to different doctors all they did was prescribe painkillers and send him away. We were so excited when we found ACNES but even after 2 trigger point injections NOTHING. The injections did not even give temporary relief, they made no difference. Now, we are worried it may not even be ACNES. Perhaps it is MALS? If anyone can PLEASE let us know a possible diagnosis or referral to a doctor or surgeon in the NJ/NY area, it would be a godsend! Please respond if anything rings a bell!!!!!

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Replies to "Hello, I am posting for my father 57M. For over 16 years he has been dealing..."

My neurologist diagnosed me with abdominal migraines. I take Nurtec otd. Sublingual every other day. I’m not out of the woods but combined with my other meds I’m much improved. Put on weight again. I was getting very thin. Food was the devil.

Dr Thomas Gillespie at St Joseph’s Medical Center in Phoenix does a robotic laparoscopic procedure which severs the effected nerves. Went home same day cured of horrible ACNES. He does take new out of state patients. JEFF