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Unexplained severe fatigue without tapering .
Polymyalgia Rheumatica (PMR) | Last Active: Oct 23, 2022 | Replies (17)Comment receiving replies
I know where you are coming from! I am 78, almost 79 and was very active and healthy prior to PMR. It is hard to come to terms with such a different me from who I was 6 months ago. Sometimes I feel like I don't know who I am.
However, I am also a realist, and the reality is that I just may have to deal with this for the rest of my life. I can do most of the things I need to do, just at a slower pace. Frustrating, at times, but doable, and I continue to push myself to be as active as possible.
I so appreciate this space which gives us a place to vent, to learn and to appreciate each other.
Replies to "I know where you are coming from! I am 78, almost 79 and was very active..."
Your words resonate so deeply " I feel like I don't know who I am" .
I was just saying to my husband last night the same words.
Is this the new me or will I come out of this and be myself again?
Thank you for sharing!
Yes I absolutely agree with your sentiments. I too was a fit 73 year old. Am now on 7mg tapering slowly after following specialist advice and tapering too quickly from 40mg Pred. Have faith we may yet get that get go back.
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all i can say is ditto to your above message. I too am an active 77 (78 in 2 wks lol) I do pilates and walk a mile every day. That was then, this is now. I have tapered down to 1 now up to 5. i see my Rheum Thurs. The pain was so minimal when I was on 10-15mg pred. I hate taking med. My once thick hair is thining so much. These group discussions help.