← Return to Glimmers of Hope: Post-COVID Syndrome Research

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@msdoss

Karen. I am looking for a group of people that did not have COVID, but are experiencing increased autoimmune issues. I did have the 1st & 2nd COVID Pfizer vaccine shots.
I did have an autoimmune condition prior to vaccine, but have developed issues after taking the vaccine.

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Replies to "Karen. I am looking for a group of people that did not have COVID, but are..."

Hello,
To my knowledge, I have not had COVID. However, I was seriously ill and ended up in the ER, but they had no idea what was wrong with me. A year or so later, I took the first vaccine and was so violently ill, that I’ve never taken another one. I had autoimmune issues before as well.

There are many people in the Neuro V Long-Haulers Facebook group who have new or worsened autoimmune reactions after the Covid vaccines,
myself included. In my case, the autoimmune reaction caused new onset sensory and motor peripheral neuropathy. I am much improved now at 19 months post Pfizer vaccine x 2.

My husband is having this issue. It started a week or two after our second Pfizer vaccine. Nothing has helped and they haven’t found any answers with multiple blood tests, neuro visit, rheumatologist visit… it’s been a nightmare & his mental health is affected now too. There is also an odd side effect that occurs closely after eating. Would love any info or connection to anyone experiencing similar. We’ve had covid twice & he doesn’t get too sick with it.

My husband is in that situation. He had headaches, then daily migraines, and now also POTS, dizziness, vestibular migraine, and nausea. This is almost every day, has been going on for 9 months, and it started the morning after receiving his second booster. (Moderna after 3 Pfizers) He cannot work, read, drive, walk, etc. and is bedridden for much of the day. It feels to us like an autoimmune reaction, but doctors seem to only want to treat the migraine symptom. Very frustrating.