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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 18 hours ago | Replies (845)
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@bicycle3

I have inoperable lipo sarcoma attached to my hip. Other bits have been removed with resectioning of bowel.
Have had 15 radiations and 5 chemo's.
Will get a scan at end of month to see what is next.
This is all after a resection of bowel in 2001 from a mass tightening around the outside of the bowel.
No scans until 2021 because of a cloudiness on dexascan.
A patient at Wilmot Center of Strong Hospital in Rochester, NY

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Replies to "I have inoperable lipo sarcoma attached to my hip. Other bits have been removed with resectioning..."
Colleen Young, Connect Director | @colleenyoung | Oct 15, 2022

Welcome @bicycle3. I look forward to learning more about you. How are you feeling after radiation and chemo? How is your mobility?

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william2022 | @william2022 | Oct 17, 2022

Hello @bicycle3 and thanks for your note. All of us here on Connect have such extraordinarily unique journeys. And yet we all have this one common thread in our diagnosis of sarcoma cancer.

Your journey is so very different than my own. I think I have dealt with a lot but I can't imagine a 20 year journey with such a mysterious and powerful cancer. I sure admire your amazing level of activity. I try to do a little aerobic activity and lift a few times a week which is a big change for a guy who used to be a genuine "gym rat"!!

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