Connect
← Return to Increasingly Difficult to Accept Peripheral Neuropathy
Discussion
Increasingly Difficult to Accept Peripheral Neuropathy
Neuropathy | Last Active: Aug 10 12:43pm | Replies (233)Comment receiving replies
Ask your neurologist for a tissue biopsy. They take small pieces of tissue from your ankle up to your hip. Under a microscope they can see the nerves and damage or loss of the amount of nerves you should have.
It took me 8 years of tests. It was pretty difficult. So my diagnosis: non length dependent small fiber sensory neuropathy. Means from the bottom of my feet to the top of my head. Autonomic neuropathy. This is more serious. The disease has killed the nerves in my heart, eyes, kidneys and bladder. Because if the nerve death in my heart they started out putting a pacemaker in plus numerous meds. Nothing is working any more and I am on Hospice. I have about 6 months to live. I’ve been declining pretty fast lately. The only think hospice can do now is make me comfortable. This means a bunch of opiates to try to control the pain.
I hope you get the answers soon. If caught early there is a lot that can be done to slow down the progression of the neuropathy and help to remove your pain. I hope thing work out for you.
Replies to "Ask your neurologist for a tissue biopsy. They take small pieces of tissue from your ankle..."
Connect
Omg. Im so sorry that you have to live with this. I also have severe sensory autonomic polyneuropathy. Im in constant pain throughout my body.
Dr's are having a difficult time diagnosing the cause. Mine began in my toe in 2014, today its all over, my eyes my memory is going. I have it severely in my feet, I can no longer feel the ground and need cane or walker or I'd fall over.
My eyes began with blurring, now the light blinds and hurts my eyes. I've lost a lot of weight due to the disease. Im so weak, fatigued, anxious and lack sleep due to it.
When driving it sometimes feels like I'm in a tunnel it makes me anxious and afraid, but leaves in a couple minutes.
The severe throbbing burning pain in the legs from ankles to buttocks is so much worse when I lye did it's 24 hour pain.
Im becom a mean woman and can't seem to control my emotions.
I thought from the pain med, but have since gone off them and still can't control my feelings, mainly if something irratates me.
My hands and fingers have lost their strength, I drop things. My hand writing is beginning to be affected by it.
I cannot take the gabba, but still take it to help the pain some. It makes me feel so loopy also contributes to my imbalance.
I cannot live with this much longer. It's consuming me and has taken away all my joy, with family, friends, and all socializing.
Tell me you're still with us! I've told my family that this disease is killing me but no one seems to take the time to read up on it. They are oblivious as to why I need my cane or assistance.