Hello @casualsuman

I'm wondering what type of scans your dad had. You mentioned CT scan and MRI being normal. Are you aware of the Gallium 68 scan. This type of scan was developed specifically for the imaging of NETs (which are often not found in traditional CT scans or MRIs). If your dad's current hosptial system does not have this equipment, I recommend that you find a larger health system that has one and get a referral for this specific scan. Here is some information about this scan:
--Gallium 68
https://www.carcinoid.org/?s=Gallium+68
and
--68 Gallium Dotatate Positron Emission Tomography Pet-
https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/
I hope that your dad has an opportunity to have this scan. Will you post any questions you might have?