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Collagenous Gastritis

Digestive Health | Last Active: Nov 19 2:11pm | Replies (460)

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@ru4tarheels

I was diagnosed with collagenous gastritis 3-4 years ago and continue to fly to Boston from the Southeast US at least once a year. Working with my doctor, I have found a treatment that works well and he thinks through every treatment. Definitely worth a visit to see the specialist. Before seeing him, I had a hemoglobin that got down to 4 once and had more frequent episodes. I will say, my disease seems to present differently than most (massive and unpredictable upper GI bleeds so my treatment is likely much different than others).

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Replies to "I was diagnosed with collagenous gastritis 3-4 years ago and continue to fly to Boston from..."

Did they say dieulefoy lesions??
Do you also have Ehlers Danlos?

Hi. My daughter is having the same issues but they never seem to find where the bleed is coming from. Were your doctors ever able to find where the bleed was coming from and how to stop it from happening ?