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Squamous Cell Vulvar Cancer: Who out there has this cancer?
Gynecologic Cancers | Last Active: 6 days ago | Replies (282)Comment receiving replies
Thank you so much for reaching out. I. Saw my oncologist and went as expected I have the pet scan this Tuesday and if all goes well surgery will be scheduled after that. It's so frightening not knowing anybody else that has had this particular cancer being that it's on the outside of my body is even worse because it's so sensitive I can't sit comfortably I can only lay down and I'm trying to work up until I have the surgery and I have a sit-down desk job. Good news though he thinks he can get it all with surgery and I won't need chemo or radiation which is a blessing
Replies to "Thank you so much for reaching out. I. Saw my oncologist and went as expected I..."
Hello,
Currently awaiting my online appointment with my surgeon. Have had biopsy, CT and PET scans.
Trying to avoid tight pants, lol! So far just minor discomfort, but of course I am more aware since my diagnosis.
I am a 3- Day walker for Breast Cancer....so of course I get diagnosed with something I never even new existed!
I had been sharing with the nurse and PA how absolutely blessed I was to be so healthy and able at 61 to be participating in a 60 mile walk. Then the other shoe dropped, I guess. I agree with the previous comment that practitioners should share what they are looking for. I knew I had this "thing" down there for a while. Thought maybe my old episiotomy scar was irritated. Meant to ask about it and forgot until she asked me about it. Had I been better informed, I may not have waited.
We will see what that costs me once staging is complete.
Thank you for being here. Nobody knows except my husband yet.
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@bobette1 Thank you for letting me know how your appointment went with your oncologist.
It's great that you will have the PET scan very soon and surgery can be scheduled quickly if all goes well with the PET scan. It is good news that your oncologist believes all you will need is surgery which is reassuring. You will know very soon the direction your treatment will go.
Oh, it sounds so uncomfortable for you. I didn't know what I'd feel like doing after my surgery so I spent some days before then cooking and storing away meals . That felt good to me. What are you doing to take care of yourself that feels good to you?