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@ilean

I have been trying. Supposedly I am seeing “the best”. My husband says I am a 1 percenter and the doctors just don’t know what to do!

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Have you had any previous abdominal surgeries that could have created adhesions in your abdominal area or are you lactose intolerant or have SIBO? Have you had an MRI? Are all your blood tests normal….. I had one of my blood tests low normal for over a year & didn’t think too much about it, but it was a signal…. Until I had a little old urine test from a walk-in clinic for a job change was another signal…. My PC did a 24 hr urine & found lots of protein in my urine & that’s what my blood work had showed that I was low normal in my protein…. I then went to an internist who thought I had lupus, but no….. I then went to a nephrologist & had a biopsy done on my kidneys & bingo….. amyloidosis diagnosis….. all because a former primary doc told told me my symptoms were because I was old & on my feet a lot…. Or probably stress related….. that’s why I quit my job (as an RN) & went somewhere with no benefits doing the same thing, but I had to get a physical for the new job & It saved my life!!!!! Keep digging & reading whatever you can & you will get your diagnosis! I had the diagnosis before I went to Mayo… The nephrologist sent the biopsy to Mayo for testing!! Don’t Give Up!!!! Prayers For Answers…🙏❤️