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Kevzara (sarilumab) to treat PMR

Polymyalgia Rheumatica (PMR) | Last Active: Apr 4 7:55pm | Replies (156)
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@michwest

Thanks @hfoster yes it’s all a bit overwhelming at the moment. I have been a very active person - runner etc so this has been tough to deal with as I have pain even putting clothes on. Yes you have to wonder if covid has played a part. Like you I’m not sure if RA would be a better diagnosis. Anyway one day at a time. Hope you feel better soon.

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Replies to "Thanks @hfoster yes it’s all a bit overwhelming at the moment. I have been a very..."
hfoster | @hfoster | Oct 14, 2022

Thank you. Same to you. I remember how awful it was in the first few weeks and months. It sounds like you've gotten to a good Dr. early. What a difference that makes. It took me 8 months and lots of misdiagnoses along with 6 doctors before I started treatment. As you are researching, check out this site: https://healthunlocked.com/pmrgcauk
It has been really helpful. Also, there is a book on PMR that has a good summary of research and experiences: Kate Gilbert's Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd edition. Will be interested to hear how your PET scan goes. That was never offered to me but wondering if I should get it to confirm my diagnosis and ensure I'm getting the proper treatment. It does get so much better once you start Prednisone. Hope you get some relief soon.

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