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High or Fluctuating Chromogranin A Level: What does it mean?
Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)Comment receiving replies
Welcome, @casualsuman. Chromogranin A (CgA) is a reliable serum diagnostic biomarker for pancreatic neuroendocrine tumors. @thebobk, if your pancreatic tumor is not a neuroendocrine type of pancreatic tumor, I'm not surprised that you haven't heard of CgA.
Casualsuman, to connect you with others talking about pancreatic neuroendocrine tumors and CgA, I moved your question to this existing discussion in the Neuroendocrine Tumors group:
- High or Fluctuating Chromogranin A Level: What does it mean? https://connect.mayoclinic.org/discussion/chromogranin-a-level-was-539/
I did this so you can read the helpful posts members have made that may help answer your questions and so you can easily connect with members like @kaforester3 @microbe1943 @fightinghopefully @tomewilson @hopeful33250 and others.
While we wait for others to chime in, what has your father's team suggested as next steps for further investigation?
Replies to "Welcome, @casualsuman. Chromogranin A (CgA) is a reliable serum diagnostic biomarker for pancreatic neuroendocrine tumors. @thebobk,..."
They suggested that nothing can be said at the moment but since all the Ct scan and MRI results are good, it is very clear that your surgery was okay and maybe chromogranin was increasing due to some other stuff, They even go on to say that in next 3 month regular checkups we will not conduct the chromogranin test cause it can be diverting. At the present, I am deeply concerned that what must be the reason for this huge hike in the Cga level that it has reached 3300 from 1000 in just 3 months.
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Hello @casualsuman. I'd like to join @colleenyoung in welcoming you to Connect. I've had surgeries for three neuroendocrine tumors (NETs) in the upper digestive tract and Chromogranin A is one of several diagnostic tests used when doctors suspect a diagnosis of NETs. Here is an explanation from the Carcinoid Cancer Foundation regarding diagnostic tests:
--Diagnosis and Follow-Up Tests.
https://www.carcinoid.org/for-patients/diagnosis/diagnosis-and-follow-up-tests/
When there is a high CgA combined with other markers, a diagnosis of NETs is suspected. Have your dad's doctors said that his tumor was a NET? (This would show up in the biopsy report.)