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Replies to "My doctor is not sure yet whether my headache is migraine. The thought was that it..."
Chronic Pain | Last Active: Oct 15, 2022 | Replies (52)
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My doctor is not sure yet whether my headache is migraine. The thought was that it was temporal arteritis so I spent 3 days in the hospital getting very strong doses of steroid medicine. Next Tuesday I will have bi-lateral biopsies of the temporal arteries. If that is negative, they will look at possible CFL. Anyone out there with this condition?
Replies to "My doctor is not sure yet whether my headache is migraine. The thought was that it..."
CSF leak, yes. I have had 5 blood patches in my spine with glue. I still have a daily persistent headache, so obviously they didn't block up the holes, if there were even any. Next I need a DSM to determine where and if they are there.
Mikayla
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I just spent the last 2 months getting tested for temporal Arteritis. I had a bio, MRI, CT, etc. all my tests came back normal. I had loss of vision as well as face numbness.
Until this morning I was terribly frustrated.
Today I just happened to have a follow up appointment with my neurologist. I ended up seeing his PA instead and he was a blessing! I filled him in on the rheumatologist stuff, and he quickly diagnosed me with migraine with aura. He said my loss of vision was the aura.
I got a shot and am going back in 2 months. Hopefully, I will start feeling better soon!