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Neuroendocrine Carcinoma with Liver Metastasis
Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (48)Comment receiving replies
@keeper3102
Hi Lucy and welcome to Mayo Connect. I wish you well as you anticipate surgery on the 20th of October. I hope that all goes well for you. You ask good questions related to understanding more about NETs. From my own personal experience, having had three surgeries for NETs in the upper digestive tract (2003, 2005 and 2016) I can understand your curiosity. It is important to learn as much as you can in order to advocate for yourself.
In learning more about NETs, here is a video presentation from one of Mayo Clinic's NETs specialists that might help you.
If you are comfortable sharing more, where are NETs located? Were you having symptoms prior to the diagnosis?
Replies to "@keeper3102 Hi Lucy and welcome to Mayo Connect. I wish you well as you anticipate surgery..."
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Thank you some much for posting the video! Gave me a lot of answers. I am from Argentina and mu best friend has Cervix NET. Did chemo and radio in 2020, now she has metastastis in liver and bones, 2022. Not sure what road to take, but her family opted for better life quality than survival rate.
I think this is the best decision, as she has grade 3 tumor. Her financial status is poor, so better to spend in life quality.
I learned about her new condition Monday and I am a feel very sad.
Wishing the best to you all!