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← Return to Kevzara (sarilumab) to treat PMR
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Kevzara (sarilumab) to treat PMR
Polymyalgia Rheumatica (PMR) | Last Active: Aug 24 6:34am | Replies (162)Comment receiving replies
Hi @hfoster I’m the process of being diagnosed myself with PMR and I am also 54. My rheumatologist also feels I am quite young and she has had patients who are young presenting like they had PMR but it was mimicking RA. She has ordered a full PET scan on me to rule out anything else before starting me on prednisone. I also don’t have pain in fingers, toes etc - pain in hips and down back of legs and now developed in my shoulders and neck.
I was wondering how many ‘young’ people in this group have been diagnosed with PMR as well.
Replies to "Hi @hfoster I’m the process of being diagnosed myself with PMR and I am also 54...."
Hi @michwest, I would like to add my welcome to Connect along with @hfoster. My first occurrence of PMR was when I was 64 and 54 does seem a little young. From what I've read it mostly occurs in adults over the age of 50 but there have been occurrences at younger ages.
"Can you get PMR in your 40s?
Since PMR can develop in mid 40s, a high index of suspicion is necessary in younger patients presenting the bilateral pain in shoulders, hips, and back, with elevated acute phase reactants."
-- Early onset polymyalgia rheumatica: two rare cases under age of 50:
https://pubmed.ncbi.nlm.nih.gov/28324118/
It's good that your doctor is checking for other conditions as there are conditions that mimic PMR. Not sure if you have seen this one but it's an easy read and might be helpful:
-- Diseases that mimic polymyalgia rheumatica (PMR):
https://www.medicalnewstoday.com/articles/diseases-that-mimic-polymyalgia-rheumatica
Were your erythrocyte sedimentation rate (ESR) and C-reactive protein (CRP) levels high?
Hi, I was 58 and it developed within 48hrs of my 2nd Pfizer COVID vaccine. I started on 20mg of Prednisone 3 yrs ago. Tapering ok until I hit 10mg. Only able to get to 6mg in the last 2 yrs but then flared 3 times. Seems like 7 is my sweet spot. Hoping my Rheum will trial me on Kevzara this month. Fingers crossed.
I was also too young diagnosed at 43.
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I'm sorry you're on this journey. Isaw a poll that one of the Facebook PMR sites did asking what age symptoms started. There were a ton of people in their 50s. I think covid has played a part. My Dr said I should be happy if it turns out to be RA.... so many meds approved that get rid of the pain. I'm not convinced though. Everything I've experienced is classic PMR. I'll be getting a second opinion next month. Best wishes in your journey.