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@calannie

I have very similar problems. I was having severe lower abdominal pain in one spot--so did colonoscopy--and when finished they told me I needed immediate surgery my intestines had shrunk to the size of little finger. Had a colostomy--which they said they would reverse in 6 months when it had had time to heal. Only the second surgery my intestines kept ripping apart when they tried to put me back together. Upshot I had 4 surgeries over 2 years, got sepsis, almost died, got through 3 colostomies and one ileostomy--all of which leaked constantly--ugggh. But eventually they put me back together. Year since then I had spontaneous rectal bleeding then the MOST painful episode when they told me I had torsion from all the scar tissue. Told me had to go on FODMAP diet--which is insane. No fruits, no vegetables, no dairy, no caffeine, no whole grains.
Basically I can have meat and white rice, white potatoes, sourdough bread. All of which I had eliminated from my diet years ago. (Not all meat--still ate chicken) I've been trying adding a few things back--I do okay with bananas & avocado, kefir, and one or two spoonfuls of steamed celery or onion. Trying yams next.
But I still have a pain from time to time in that origianl spot where they cut out my gut--don't know if it is like phantom limb pain or what.
Seems like the FODMAP is basically just "let's cover all the bases in case". Someone somewhere must be doing research on a beter approach?

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Replies to "I have very similar problems. I was having severe lower abdominal pain in one spot--so did..."

Oh @calannie , you have been through it - I'm so sorry for all you have endured! You are very strong and at least it sounds like you are on the mend.

I think our gut biomes are so individual that it may be difficult to come up with a one size fits all diet, since we can all react to things so differently, even with the same conditions.

I hope you find more & more foods that you body tolerates as you continue this journey. I certainly have no answers, but I'm still searching!!

Praying for your strength and encouragement and continued healing❣

Low FODMAP is not no fruits and veggies, just certain ones should be avoided. I have figured out onions and garlic are the worst for me. There is an app called FODMAP by Monash that is very helpful and even tells you things like tablespoon of peas are ok, 1/4 cup is not, etc.