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Diagnosed with DCIS: How do I decide on treatment?

Breast Cancer | Last Active: Mar 20 10:00am | Replies (345)

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@callalloo

Hello @nayade ,

It sounds like good news for your friend, a cancer likely caught early (8mm is very small). [I'd wish that the surgeon had done a sentinel lymph node biopsy but maybe the doctors determined clean lymph nodes some other way.] And you didn't mention the HER2 status so what I note below is if the cancer was E+, P+ and HER2 negative. I'm not a doctor so the following is just from what I learned from my post-lumpectomy journey.

Lumpectomies came about when women demanded that doctors review the usual 'automatic mastectomy' decision for breast cancer. The resulting lumpectomies were a compromise so the 'rule of thumb' developed that "radiation-plus-lumpectomy" was an alternative to complete mastectomies for selected cases of breast cancer. According to my oncologist, they have still have equivalent statistics for success. So the rule of thumb remains that patients having lumpectomies have (or at least consider) post-surgical radiation.

There are differences in the kind and frequency of radiation though. The oncology radiologist I saw offered a series of 5 sessions, every other day, with the whole cycle complete in 9 days. Not every facility has the technology to provide that it though. And some doctors do not routinely recommend radiation for older patients.

If you friend can get a second treatment opinion, she can ask that doctor about radiation choices and the tamoxifen. If she is postmenopausal, she can also ask about aromatase inhibitors which are the drugs most commonly prescribed in the United States (but not always, again) for E+, P+, HER2- small tumors caught early. But there are a lot of other factors that an oncologist considers when making recommendations as well and maybe tamoxifen is the best idea.

There is no clear "universal protocol" that I know of just the usual 'standard recommendations' which people frequently get a second opinion to confirm or question. Doctors can have different opinions which are, both, valid but just based on differing perspectives. That's why a second opinion, if possible, can be very reassuring.

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Replies to "Hello @nayade , It sounds like good news for your friend, a cancer likely caught early..."

Dear @tctredwell1 and @callalloo Thanks for keep in touch.
My beloved familiar refuse profilactic treatment: no RT, no Tamoxifen (because of osteoporosis-bones status aromatasa was not an option). After having a second conversation with the same oncologist knowing that my familiar refused RT...she explained us that for "cdis of low risk type" like this, the ussual "combo"(lumpectomy+RT/Tamoxifen) is not 100% the specific treatment... "You can face the low risk of having or not a future episode or try to minimize the probability of future episode with preventive combo or a part of it but having in consideration secondaries effects of the preventive treatment".
Food 4thought...
In this point we were in silence but she said OK I think we've all clear and we keep just under observation x 2 years which is OK, no problem. Some studies support the combo but in this case has a good pronostic by itself and with lumpectomy only. She said there was no illness and tumor 0 phase was removed completely.

By the way, they didn't look for her2 and centynel so they explained that was unnecessary in this step 0.

We keep calm and comfortable with the decision and continue with regular life.
On my side I spent many time studying statistics from hospitals and pubmed looking for [lumpectomy-only] and I think I'd take the same decision.
It was hard decisions so the external pressure to take preventive anyway.

If you have some point to comment feel free. Sorry for my english.
All the very best for u both.