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Osteonecrosis/ Avascular necrosis

Bones, Joints & Muscles | Last Active: Jan 31 8:44pm | Replies (18)

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@becsbuddy

@coramayo What a difficult diagnosis with no idea what caused it. I included a link to a previous discussion on the same topic that you should find helpful.
https://connect.mayoclinic.org/comment/111592/
There are also some groups where you also post your question. One is on bones and diseases and the other on joint replacement.
https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/
https://connect.mayoclinic.org/group/joint-replacements/
Do you have to make a decision soon or are you gathering information?

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Replies to "@coramayo What a difficult diagnosis with no idea what caused it. I included a link to..."

I have already had 2 joints replaced and scheduled for a third surgery in a few weeks. I will have to have a fourth surgery since my right shoulder bone has already started to collapse.
So it will for both shoulders and hips collapsing in one year. I just found out I have it in both knees but still early maybe stage one or two.
I feel desperate to find a doctor to over see my care
I see in the Mayo Clinic link you provided AVN can be treated with blood thinners and cholesterol lowering medication. I’m already taking osteoporosis medication.
Trying to find a doctor who can recommend and manage this medication approach to treatment. I’m sure it’s in many joints in my body.
Finding challenging to find a knowledge doctor. Possibly an endocrinologist and or Rheumotologist. I have been to several over this past year.