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Diagnosed with DCIS: How do I decide on treatment?

Breast Cancer | Last Active: Mar 20 10:00am | Replies (345)

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@nayade

Dear @tctredwell1 and @callalloo
Thanks for sharing your experiences. I'd ask you (both) what happened after lumpectomy.

A familiar (+64)has been diagnosed CDIS (free marges, small size 8mm, progesterone&S positive) I've no idea if the Anatomyc Pathologc used Oncotype or mamaprynt (Europe) so there's no info about it in documents.

Lumpectomy was fine and CEntinel nodul was Not studied because it was an early stage and they consider it was unnecesary.

After surgery: Surgeon doctor is so happy with the lumpectomys result.

Oncologist and radiot. doctors suggested as a preventive step hormonal therapy(tamoxifen x5years)&30 sessions of radiotherapy.

We are wondering if this is absolutely necessary. Doctors say "it's the universal protocol"

FEAR about preventive's treatment suggested. No receptive.
Thanks for your comprehension .

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Replies to "Dear @tctredwell1 and @callalloo Thanks for sharing your experiences. I'd ask you (both) what happened after..."

Hello @nayade ,

It sounds like good news for your friend, a cancer likely caught early (8mm is very small). [I'd wish that the surgeon had done a sentinel lymph node biopsy but maybe the doctors determined clean lymph nodes some other way.] And you didn't mention the HER2 status so what I note below is if the cancer was E+, P+ and HER2 negative. I'm not a doctor so the following is just from what I learned from my post-lumpectomy journey.

Lumpectomies came about when women demanded that doctors review the usual 'automatic mastectomy' decision for breast cancer. The resulting lumpectomies were a compromise so the 'rule of thumb' developed that "radiation-plus-lumpectomy" was an alternative to complete mastectomies for selected cases of breast cancer. According to my oncologist, they have still have equivalent statistics for success. So the rule of thumb remains that patients having lumpectomies have (or at least consider) post-surgical radiation.

There are differences in the kind and frequency of radiation though. The oncology radiologist I saw offered a series of 5 sessions, every other day, with the whole cycle complete in 9 days. Not every facility has the technology to provide that it though. And some doctors do not routinely recommend radiation for older patients.

If you friend can get a second treatment opinion, she can ask that doctor about radiation choices and the tamoxifen. If she is postmenopausal, she can also ask about aromatase inhibitors which are the drugs most commonly prescribed in the United States (but not always, again) for E+, P+, HER2- small tumors caught early. But there are a lot of other factors that an oncologist considers when making recommendations as well and maybe tamoxifen is the best idea.

There is no clear "universal protocol" that I know of just the usual 'standard recommendations' which people frequently get a second opinion to confirm or question. Doctors can have different opinions which are, both, valid but just based on differing perspectives. That's why a second opinion, if possible, can be very reassuring.

Hi nayade.
I haven’t had my lumpectomies yet. I’m scheduled for surgery on October 24 and my follow-up appointment is November 10.
I will let you know about my surgery and after-care in a few weeks. Take care.

Has a genetic test been done to see what the odds for a reoccurrence are? For DCIS there is a test called Oconotype DX DCIS that gives you the chance of reoccurrence to help decide if radiation is necessary . I also had a small area of DCIS ER/PR+. I had a lumpectomy on 9/21. The pathology report came back with nothing found, no cancer, no DCIS present. It was all removed during the Sterotactic biopsy I had prior to surgery. After surgery I was still recommended for a mega dose radiation, 5 days a week for 4 weeks since this is “standard” treatment. I question the “standard” part. Back in the day standard treatment was a mastectomy until women & scientific research started to question this & they started doing lumpectomies. I suggest researching your specific situation to help decide what treatments you believe you need or don’t need. They all come with pro’s & con’s.