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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

Chronic Pain | Last Active: Apr 2 2:07pm | Replies (305)
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@owenst

My mother is 78 and has seen numerous specialist for chronic abdominal pain. The neurologist indicated this could be ACNES. She has been on nortriptyline with little help. She cannot take allot of meds. She cannot not walk far, sit or bend. Only able to lay on her bed in a reclining position. Heat helps and when she has this horrible pain Bentyl ( antispasmodic) helps. Doctors are bewildered. Has any had this or know someone. Thank you

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Replies to "My mother is 78 and has seen numerous specialist for chronic abdominal pain. The neurologist indicated..."
Colleen Young, Connect Director | @colleenyoung | Oct 13, 2022

Welcome, @owenst. To help you connect with other members and to see helpful posts related to your question, I moved your message to this existing discussion:
- ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome: https://connect.mayoclinic.org/discussion/acnes-abdominal-cutaneous-nerve-entrapment-syndrome/

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Amanda Roe | @amandajro | Oct 13, 2022

Hello @owenst. I would like to add my welcome along with @colleenyoung. I am so sorry to hear your mother is going through this. It is great of you to join Connect in order to support her.

Members @jgroudan @jimpain and @benacnes have all shared their experience in this discussion and may be able to come back in to share more with you.

Have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic for your mother?

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