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@sally0526

I had my appointment with a Nephrologist yesterday. I was referred to him by my PCP months ago before my UTUC diagnosis for a blood pressure problem. The blood pressure problem eased up over time but I decided to keep this appointment to get a THIRD opinion on my UTUC treatment by my SECOND opinion urologist. First, he looked at my records concerning my blood pressure and assured me that my numbers weren’t bad after all which put me at ease. Then we discussed my upcoming laser treatment for my UTUC. He agrees completely with that course of treatment and commended me for getting the second opinion. He was shocked that my first urologist only gave me 2 choices for my low grade non invasive UTUC (Jelmyto or a radical nephrectomy). (Although he DID say a radical nephrectomy IS the appropriate treatment for high grade invasive UTUC. ). He said my both of my kidneys appear to be healthy (just a small drop in function-probably due to the tumor blocking part of my left ureter) and a healthy kidney should not even be considered for removal, even with the low grade UTUC. He stated that everything should be done to eliminate the UTUC before even considering a nephrectomy and the laser ablation was an excellent start. This consultation was such a relief and confirms my decision to go ahead with the laser surgery. Please….if you have any doubts at all about a diagnosis or a treatment plan—get second and even third opinions. I felt almost happy when I left the Nephrologist’s office. He took his time explaining everything to me and put me at ease about my upcoming UTUC laser surgery. He is optimistic for my prognosis and that means a lot to me. I feel like I can relax a bit knowing I’ve made the right decision for my health. 🙂

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Replies to "I had my appointment with a Nephrologist yesterday. I was referred to him by my PCP..."

Such great news, Sally. Having confidence in your care is important.