Hi @kimberlyh57, that's frustrating. I too saw a local VS and while he showed some concern, it wasn't what I expected and basically just said to have another CT in a few months and we'll go from there. I also saw a GI specialist to see if those issues were related to the celiac aneurysm and he said "it's hard to tell". So he started me on a low FODMAP diet which has helped some. Would your primary Dr. be able to send your images to another VS and have a virtual appointment? I might go that route eventually. I read through this entire forum and gathered names of Vascular Surgeons across the country who are familiar with our condition. It would also be great if Mayo provided a list of theirs who have direct experience with celiac aneurysms. I tried calling, but didn't get anywhere.

Dana Mann, MD - Bend Oregon
Dr. Marshall Dines - Advocate Hospital (Lutheran General) Park Redige, IL
Paul DiMuzio, MD, FACS - Philadelphia, Pa
Dr. Lee Centennial Hospital - Nashville
Dr. Jay Vasquez Vascular surgeon - Dallas
Timothy M. Sullivan - Abbott Northwestern Hospital Bozeman, MT