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Small Fiber Neuropathy; worsening pain

Neuropathy | Last Active: Oct 14, 2022 | Replies (18)

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@giz

I was diagnosed with diabetes about 3.5 years ago. However I spent about 4 or so years as a prediabetic. At that time my doctor was unconcerned. So, eventually I was treated starting about 3.5 years ago with drugs to lower my HA1C. So, I have since learned that being in a prediabetic state for so long contributed to the SNF. My symptoms run the gambit from numbness, burning, the feeling a coldness, stabbing and feelings like I have a stone in my shoe, which of course I do not (lol). My pain is worse at night in bed. I am on 3000mg of neurontin daily and could not live without it. But it does have such a fatiguing effect. I also have degenerative disc disease and possibly a pinched nerve that may have some effect on my feet. I have a follow-up for this and am going to have the autonomic nerve testing to verify what several Drs have told me is SNF. No one so far has mentioned the punch test. I am 67 and for me about two years ago I was suddenly unable to walk at all from the pain and contemplated a wheelchair. That is when I received the neurontin and about a year later the medical marijuana. I feel bad for those of you who live in states that do not offer this option, as it has been a lifeline for me. I never expected having lived a full and active life to rather suddenly fallen off the SFN cliff. I live in an active 55+ community and the result is having to pull back my activities. But I persevere. Mindset is so important, and never giving up and giving in, although difficult, can help in so many ways. Bless you all.

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Replies to "I was diagnosed with diabetes about 3.5 years ago. However I spent about 4 or so..."

I am glad you are finding relief. I too use THC, and am on 1200mg Gabapentin. What strains help you the most. I have found that "Blue Dream" and Sundae Driver" work best for me. CBD not so much. I use Indica gummies for nighttime.