Hello - I too have nodules in my lungs but may be starting chemotherapy. I am interestedin whether they tried that for you?

Curious about how they removed those nodules from your lungs, like surgery or chemo? And did you have a primary source of LMS somewhere else? I'm halfway through radiation treatments in order to shrink the mass before surgery (3"X3"X2.5") in my pelvis. Pain radiates down my left leg to below my calf muscle.

This is the first time I have reached out to anyone since being diagnosed. I have Leiomyosarcoma which was found in January 2023. At that time, they found a tumor on my left kidney and some spots on my lungs. I was setup for a lung biopsy locally, but it was cancelled because the doctors thought it was a fungal infection. The tumor on my left kidney was removed in March 2023 and I was setup to see a doctor at Mayo Clinic in April 2023. I began CT scans every six weeks and my Dec 2023 scan showed a shadow on my right hip. By March 2024, it was pronounced and a biopsy was completed at Mayo. They determined it was the same cancer as were the lung nodules that were being ignored. I was now stage 4. I started chemo in June 2024 (Doxorubicin). I had chemo every three weeks until Dec 2024. At that time I had reached the max I could take. CT scans since then have shown the cancer has doubled twice in my lungs. I am beginning to start another round of chemo. So far, I have tolerated the chemo well and have gained my strength back since stopping chemo in Dec. Original diagnosis was 18 to 24 months. I am now 28 months since my original diagnosis. Giving it all to God and praying I have more time with my children. Let me know if you have specific questions I can answer. Blessings! DEB