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Any LEMS (Lambert-Eaton Myasthenic Syndrome) people out there?

Autoimmune Diseases | Last Active: Jun 24, 2023 | Replies (27)
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@kjaffee

Good morning John.
I have a great portal called MyChart. I emailed the MS specialist and she replied that the neuromuscular team will decide what happens next. I have my EMG scheduled for tomorrow at OHSU in Portland and should get the feedback I need then. I was wondering how definitive an EMG is for diagnosing LEMS. Thanks for your input!

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Replies to "Good morning John. I have a great portal called MyChart. I emailed the MS specialist and..."
John, Volunteer Mentor | @johnbishop | Oct 12, 2022

Good morning @kjaffee, Here's some info I found that may answer your question.

"ELECTRODIAGNOSTIC TESTING (EMG)​​ Increment on high-frequency nerve stimulation and post-exercise facilitation can provide confirmatory evidence ..."
-- LEMS Testing and Diagnosis - LEMS Aware HCP:
https://www.lemsawarehcp.com/lems-testing-and-diagnosis

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