Yes I was diagnosed in 2019 I’ve taking 3 types of medication and now I’m taking votrient. I went to moffitt cancer center to have the timer in my liver removed but when they went in to remove part of my liver they notice more small tumors on my intestines walls so they didn’t do the surgery because of the high risk. This they didn’t see on the scan but saw them when they went to do the surgery

Just diagnosed with a 2 cm gist in the duodenum. Waiting for results of surgical consult.

Hello everyone. I have been diagnosed with a 6cm Gist located on the lesser curvature of my stomach. I have been told the the treatment is surgery. Is there any other options that make sense?

My tumor was just found on a MRCP I can’t see surgeon until later this month. Therefore I don’t have a definitive diagnosis. The tumor is wrapped around the head of the pancreas. Radiology report says it is a gastrointestinal stromal tumor. Anxiety is high. The wait is awful.

I was diagnosed in October 2000.
symptoms were only a 'lower
abdominal jelly belly feeling" no pain just discomfort. I had an 8cm tumour in the pelvis. At operation I was found to have metastasised with extensive deposits in the small bowel mesentery, pelvic peritoneum and rectum . Stained positive for Perls and negative for Schmorls. Immunochemically tumour ce4lls were strongly positive4 with c-Kit, DOG, CD34 and WT1.
I was started on Imatinib (Glivec) 400mg per day. My PET scan in
January this years was again clear.
I have a few small problems at the moment which my oncologist has ordered another PET scan in June (after overseas holiday)
I was deemed inoperable with just the Imatinib being my only treatment.
Hope this helps.