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Kevzara (sarilumab) to treat PMR

Polymyalgia Rheumatica (PMR) | Last Active: Apr 4 7:55pm | Replies (156)

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@hfoster

Thank you so much, John. Yes, I think the taper has been too fast as well and I was only on 15mg to start for 1 week before he dropped me to 10mg. I have learned a lot more over the last few months since then and have slowly tapered from 10mg. I'm at 8mg and about 80% myself and not wanting to increase Pred dose, so I've been just dealing with the pain and stiffness. The big problem is my Rheumy, the prescribing doc, wants me off Pred ASAP because he feels at 54 I am too young to have PMR. He thinks it's really RA and its symptoms are masked by the Pred. A couple of inflammatory markers were slightly elevated but nothing near what RA patients typically have. I also don't have joint pain other than my shoulders - it's in the muscles/tendons. He and I disagree on this point. His answer is Kevzara, which I'm trying to find out more about before I agree to try...going in with all the research I can this time!

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Replies to "Thank you so much, John. Yes, I think the taper has been too fast as well..."

Please let us know how it goes. BTW, I was diagnosed with PMR right after my 50th birthday. So 54 isn't unrealistic.