I deal GERD on a daily basis & take 40 mg of pantoprazole in the morning. I use a wedge pillow @ night. I had my first gastritis episode last year while having problems with gallbladder. To get gastritis under control - my doctor had me take 40 mg of a PPI in the morning and evening for 1 month - tapering back to 40mg. A few years back I had a SIBO episode and was treated with a course of antibiotics. Have not had another one since. Have you tried sucralfate or Atrantil. Also probiotics help. Hang in there - I know its awful what you are experiencing.

I am your twin, and I’m sorry for your struggle. I can relate! They believe my SEVERE swings from vicious diarrhea back to constipation every few days are from SIBO. I’m never been on the “Big 3.” My ID doc at Stanford says more and more Bronch/NTM patients are reporting this.

I have very similar problems. I was having severe lower abdominal pain in one spot--so did colonoscopy--and when finished they told me I needed immediate surgery my intestines had shrunk to the size of little finger. Had a colostomy--which they said they would reverse in 6 months when it had had time to heal. Only the second surgery my intestines kept ripping apart when they tried to put me back together. Upshot I had 4 surgeries over 2 years, got sepsis, almost died, got through 3 colostomies and one ileostomy--all of which leaked constantly--ugggh. But eventually they put me back together. Year since then I had spontaneous rectal bleeding then the MOST painful episode when they told me I had torsion from all the scar tissue. Told me had to go on FODMAP diet--which is insane. No fruits, no vegetables, no dairy, no caffeine, no whole grains.
Basically I can have meat and white rice, white potatoes, sourdough bread. All of which I had eliminated from my diet years ago. (Not all meat--still ate chicken) I've been trying adding a few things back--I do okay with bananas & avocado, kefir, and one or two spoonfuls of steamed celery or onion. Trying yams next.
But I still have a pain from time to time in that origianl spot where they cut out my gut--don't know if it is like phantom limb pain or what.
Seems like the FODMAP is basically just "let's cover all the bases in case". Someone somewhere must be doing research on a beter approach?

Thank you @willows. Given my propensity for arrhythmias & diarrhea, I'm not sure about domperidone, but I got an appointment with my PCP today and am going to ask about them all. Thanks so much!

I was of diagnosed with larger hiatial herina when I was 59 . After many doctor visits and many hospital stay, one doctor had recommended that I see a gastroenterologist and had colonscopy to find I had large hiatial herina and was given medication and diet to follow. I lost 40 pounds and felt better. after years of depending on medications for GERDs and Hiatial herina, I started to have other health problems and had to have a pace marker because my pulse was too low. Doctor said it is because of age. I was 73. I have asthma since I was little and now go to get allergy shots and also have problems with blood pressure and take three different medications a day for just blood pressure. I now have osteoarthritis and I just retired in 2021. Now I have problems with ache on my legs. I can not take pain killer medications. I take Pantoprazole twice a day and use carafate when needed for reduce acid reflux. I want to know if acid reflux cause high bleed pressure?? or make asthna worse?? with large hiatial herina??? does stress cause it to become worse???

hi shooei. my name is Pam , I have very similar issues with my gut ..seems like when I eat it gets worse. it feels like someone has their fist under my chest around the rib area. and it just gave me shortness of breath along with a feeling of tightness .. very uncomfortable feeling to say the least I’ve had abdomen sonograms ,, an endoscopy about 2 1/2 years ago they only found a small idol hernia,,which now became bigger, was noticed in the CAT scan of the chest last August of 2023. I also have Mac/bronchiectasis very similar to you for the past 41/2 years no antibiotics yet I do the same as you airway clearance, Salene nebulizer my question is, have you found any solution to this problem? drs don’t seem to know. 🙄 if you could respond back, I would greatly appreciate it. Hope you’re feeling better. my username is p1000 , I’m not very good with email or texting but I really hope you respond back. Thank you and have a great day. 😎 🤙🏻🙋‍♀️

This is my seventh year in a row now getting GERD at this time of year. I have tried a lot of things too but nothing seems to help. For me I don’t have any pain when I lay down at night.

Hi all , yes i have gerd hiatal hernia IBS and diverticulosis. I'm the same where my horrible symptoms seem to come a day after i eat anything suspect . Bloating gas upper chest pain , the anxiety comes along as well . I was on 60mg dexilant for a couple of years but my doc cut me down to 30 mg because it can cause malabsorption i guess over time . Was off it for quite awhile but now back on it with a vengeance. Waiting for my doc appt on March 12th , probably send me fpr another series of scopes. Been 8 years since i had them . Everyday is a crap shoot as to how I'll feel . No vitality at all . I envy people i see out and about having lunch , enjoying their life . Just want to live a life !

I am unable to answer your question, but as somebody who suffers from some of these issues, I want to assure you, you are not alone. I sincerely hope that you find relief as soon as humanly possible.

Hi, new to this whole format. Been reading your stories and can't believe there are so many of us suffering with these issues. I've had a sensitive digestive system most of my life. The last 20 years in and out of doctors offices, tests, meds I know are bad for me but I've been forced to take them. Sometimes they help. I even had a hiatal hernia repair along with a Nissan Fundiplication 2 years ago all to no avail. Can't remember the last time I laid flat in a bed or didn't have chest pain, gut pain, Bloating and wicked gas! I'm so sick GERD and feeling sick. I too exercise, don't drink or smoke or do drugs and am considered in good shape. Well at least on the outside I can fake it, my insides suck! I have sores in my mouth and a coated tongue again from a dry mouth at night. Yes I wear a strap to keep my mouth closed but it's still like the Sahara desert in there. Have a doctor's appointment in a couple of weeks and will be asking if it's possible I may have Sjogrens syndrome. Seems lack of saliva can maybe be causing some of this. I'm desperate to find a reason. Thanks for letting me vent.