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COVID vaccines and neuropathy

Neuropathy | Last Active: 3 days ago | Replies (2172)

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@selene53

Your story seems very similar to mine. After receiving my 4th covid vaccination in 1/2022 I started having neuropathies in my hands, legs and feet. My local GP told me it was probably a vaccine reaction, the local neurologist said the same thing. I had a million tests and scans, everything normal. And I was told I had carpal tunnel too....well, I already knew that and this wasn't carpal tunnel. My EMG was normal, twice. I eventually saw a neurologist up at University of Colorado Hospital after waiting months for an appointment. She told me she has many patients, post covid and post covid vaccination presenting with the same symptoms. She said normal EKGs rule out CIDP. She said that this is probably an auto immune reaction, which could happen with any vaccine apparently. She said it should eventually get better. Some people are treated with IVIG and/or steroids, which as an RN, I can tell you come with their own set of problems. People are also treated with Gabapentin or Lyrica, amitriptyline and other medications. I am older so I haven't done any of that stuff except the Gabapentin which did not help me.I have good days and bad days. I have taken a zillion supplements to no avail. The best advice I have given to myself is to stop googling this so much and definitely stay away from all the conspiracy and nut job websites. I find if I keep my stress level low and get a good night's sleep, that helps more than anything. I am still glad I received the vaccine because this could have happened with a covid infection too accompanied by all the terrible sequelae that covid brings. Don't beat yourself up over this. We did the best thing and the right thing with the information we had at the time. I was so angry with myself when this happened to me. I just wanted to turn back time and NOT get the vaccine, but of course that cannot be done. And that being said, I went ahead and got a flu vaccine and the Omicron booster without any increase of problems. If you went to Salt Lake, maybe you are close to Denver. I was happy with my neurologist at UCH Cherry Creek Clinic in Denver. She validated me and we are working with the presumptive diagnosis of Small Fiber Neuropathy. In no way am I making a diagnosis for you, or giving any medical advice, but maybe there is a neurologist out there who could come up with a treatment plan for you. I wish you good health and the best of luck.

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Replies to "Your story seems very similar to mine. After receiving my 4th covid vaccination in 1/2022 I..."

Meant to say normal EMGs rule out CIDP (not EKGS)