Hello,
I was inspired by your post. I was diagnosed with PN about 4 months ago. Like you have said it is very hard to accept that this illness will be with me till the end. I am getting better at it. I was terribly sad, angry, irritated, and withdrawn until a few weeks ago. I realized that I was relating everything to my illness. What I ate, the medications, how much sleep I can get, how much exercise, and on and on. I would work myself up into a panic attach. I have tried to stop that. I am doing stuff without always relating it to the PN. Everything is not happening because of PN. We have to learn to allow ourselves to get involved with life and accept that we have a disability like millions of others....and man many of them are a lot worse off than me. Thanks for the post. Like I said, it inspired me to keep getting involved.