Hi ,
I am also diagnosed with neuroendocrine carcinoid cancer which also involve two lymph nodes . How was your treatment? What to expect? Thanks

I was diagnosed with uterine leiomyosarcoma this past fall. I had a total radical hysterectomy. Appendectomy, partial myomectomy, at Dearborn Corewell/Beaumont here in Michigan. The Surgeon was able to get"95". He knew he left cells behind he couldn't access. I switched treatment centers to Karmanos Flint location to be closer to home. I have felt comfortable and respected their ability to work together and obvious competence. The Surgeon in the place upset me, though...when he said a week and a half ago that going in surgically for the rest would not be a viable alternative, in his opinion. My morbid obesity complicates being able to visualize when he would get in there, he worries about my ability to tolerate another major surgery, etc. I was crushed because I have stuck in my mind the only way to be cured of this rare, aggressive cancer, is to get it all out of there. I start radiation this week. Today they just take pictures, to ascertain the positioning fits the treatment plan the radiologist developed. I had the tattoo markers put on a couple of weeks ago. After thirty radiation treatments, the general plan is to go on to chemo. I feel lost on a fog of uncertainty. But determined to do the best I can to get well. My mobility is poor, past spinal issues, fibromyalgia, osteoarthritis. I am frustrated I can't exercise more and get stronger. I will be 65 February 25th. I do have a supportive fiancé, a lot of emotional support pets, household cleaning help, and many supportive folks following my journey on FB I have goals and desires for after treatment, like to help animals and people, I used to teach and was a therapist...much to yet do and enjoy.