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DiscussionCarpal tunnel like symptoms post COVID
Post-COVID Recovery & COVID-19 | Last Active: Sep 14, 2023 | Replies (45)Comment receiving replies
Replies to "I woke October 31 2021 unable to use both of my hands due to extreme swelling..."
Hi, I have had these symptoms as well. It started right after I had the 1st booster in October of 2021. I started having numbness in my hands only at night, then ringing in my ears this was October, November 2021, time frame. By December, my hands were so bad I wore hand/wrists braces that you would wear for carpel tunnel. My hands would get so swollen through the night, and fall asleep or have that feeling of being fallen asleep that it started waking me up ever 15 min. It was awful... By January 2022, I started having every test under the sun done. Everything was coming back negative. I also started having every joint in my body hurt. I thought I was going to die... No one could figure out what was happening. I had nerve testing done one both arms/hands, nothing. I had x-rays of my lungs, CT scans, MRI's of my neck, head, and tons and tons of blood work. Went to every specialist there was. My symptoms were progressively getting worse, and I ended up in the ER in February 2022. They did a covid tested and I was positive. During this time I had seen arthritis dr. who was questioning me why I had not gotten the 2nd booster. He was pretty aggressive about this as I was petrified at the time know one knew what was wrong. Not that this has anything to do with my symptoms, but I did ask him how he treated individuals who did not even get the vaccine. I am in the mental health field and thought I was doing the right thing. I do in fact believe it was the BOOSTER that started this, and then covid on top of it. My body could not handle it. If I could turn back time I would have never gotten that Booster. Anyhow, this Dr. put me on a tapering dose of prednisone and then kept me on 5 mg for six months in hopes that it would kick this out of my system. I also had seen another specialist who had a more holistic approach and I started taking lots of vitamins, including, c, apple pectin, and d. The prednisone had helped with the severity of the inflammation but did not kick it out. I actually at the time had asked to get off the prednisone because I did not want to be on that for the rest of my life. This was in the spring of 2022. I just ended up with consistent inflammation in my right hand and it would go away about an hour after I woke up. NOW 2023, It is all getting worse again, my hand is swollen at night and I can not close my right hand, due to the inflammation, my left hand is starting to have the same symptoms, my knees are starting to hurt. I had heard that a Low Dose of Naltrexone could potentially over time cure this. Unfortunately, I had an adverse reaction to this. I went back to the arthritis Dr. to ask if I could try the prednisone again, only to have him start reading the report and say I would never put someone on prednisone for something like this... and continue saying I actually had you stop it. I stopped him and said, actually you are the one who put me on it and I asked to stop it. We are limited in my local area with arthritis Dr.'s so I felt I would try him again, even after the vaccine conversation over a year ago. I am scared that this is starting to spread in my body and no one can find out why. This Dr. then looked at me and said, "I don't know what to tell you, I can't do anything for you". I sat there and cried... he also said, "I could give you something for the pain, I guess". I said, that is not the problem, I have inflammation that is causing the problem that is not showing up in bloodwork or anything. I just had bloodwork drawn at the Wellness Center, they checked my rheumatoid factors, sjogren's antibody, centromere B antibody , ANA pattern, Tier 1 and 2, my uric acid, SED rate, and ANA IF A W/Reflexes, as well as a list of antibody test. Let's just say all the items he would be checking. I am not sure what they all are but Again, he said, "I don't know what to tell you, but I can draw some more blood to check again". I asked why since he just said, "I dont' know what to tell you". He stood there and said, "we can check what they didn't".
I since have called my PCP, who is and AMAZING Dr. I just yesterday had an MRI of my neck and CT scan of my head. I am dizzy as well. I am waiting for results as soon as he can rule out any other issue that may be causing this, he is going to refer me to Boston. My PCP said, "I am almost 100 percent sure you have long term Covid, but I want to rule out everything else". The other Dr. made me feel as though I have no hope. I have faith in GOD and know that I will find someone who can help. I am just reading the end of you message. I to have mild carpal tunnel in my left hand that's it. I posted a couple pictures of what my hand looks like when I first wake up. My hands fall asleep during the night as well. I forgot to mention that when this started, my body felt like it was burning from the inside out. My hands were burning when it woke me up. I am scared that this may continue to get worse, but I have to believe that we will find answers. I tried to upload a picture of my hands. It did not work. I hope and pray we all find answers.