Greetings @kristin8. Welcome to the "neuropathy group" and to Connect. We love having you be a part of our sharing mission. We know that knowledge, especially about our own condition, is power. And so here on Connect, you can learn so much from others about your Periferal Neuropathy. And it helps when you also share your experiences.
The diagnosis clip is somewhat accurate but not quite everything. One thing I have learned is that even though we may all have a similar diagnosis, our symptoms, causes, and medication responses can be widely different. It is great that you are reading and researching.
Here are a couple of helpful sources for current information.
The Foundation for Peripheral Neuropathy
https://www.foundationforpn.org
Neuropathy Commons
https://neuropathycommons.org/
Have you been given a diagnosis? Was it the result of a skin biopsy? Many folks who have diabetes or have received chemotherapy seem to end up with some form of neuropathy. Others have to settle for an unknown cause or idiopathic. For example, mine is related to trauma which includes falls, injuries, and way too many surgeries.
My personal diagnosis is SFN (small fiber neuropathy). I have had it since 2013 and have been through many phases and quite a few medications and treatments.
You mention stomach and bladder issues that accompany the usual numbness, tingling, and pain. How are you handling those accompanying symptoms?
May you be free of suffering and the causes of suffering.
Chris
Thank you for your reply. I am still getting tests done. I’ve had scans on my feet, ankles and hands. They did an emergency ultrasound on my thighs to see if I have a blood clot. I go for another ultrasound on my bladder after work today and have had blood work but still need to go for one more blood test. I am on lyrica now switching to Gabapentin for nerve pain, I also take two T1s, 2x a day to manage pain. I take B12, Vitamin D, & Magnesium along with my 2 blood pressure meds and Thyroid meds.
Thank you,
~Kristin~