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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@kristin8

So my PN has been gradually getting worse over the last few years and I have been having stomach and bladder issues as well which my doctor is sending me for tests for. I was doing some more research today and found this… Also, I was reading one gentleman’s post saying that something in his high blood pressure medication caused his. I am on 2 different meds for high blood pressure, so now I need to look into that. Omg what’s next?

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Replies to "So my PN has been gradually getting worse over the last few years and I have..."

Greetings @kristin8. Welcome to the "neuropathy group" and to Connect. We love having you be a part of our sharing mission. We know that knowledge, especially about our own condition, is power. And so here on Connect, you can learn so much from others about your Periferal Neuropathy. And it helps when you also share your experiences.

The diagnosis clip is somewhat accurate but not quite everything. One thing I have learned is that even though we may all have a similar diagnosis, our symptoms, causes, and medication responses can be widely different. It is great that you are reading and researching.

Here are a couple of helpful sources for current information.
The Foundation for Peripheral Neuropathy
https://www.foundationforpn.org
Neuropathy Commons
https://neuropathycommons.org/
Have you been given a diagnosis? Was it the result of a skin biopsy? Many folks who have diabetes or have received chemotherapy seem to end up with some form of neuropathy. Others have to settle for an unknown cause or idiopathic. For example, mine is related to trauma which includes falls, injuries, and way too many surgeries.

My personal diagnosis is SFN (small fiber neuropathy). I have had it since 2013 and have been through many phases and quite a few medications and treatments.

You mention stomach and bladder issues that accompany the usual numbness, tingling, and pain. How are you handling those accompanying symptoms?

May you be free of suffering and the causes of suffering.
Chris

Hello @kristin8. I would like to add my welcome along with @artscaping. You will notice that I have moved your post into an existing discussion for new members, which you can find here:
- Living with Neuropathy - Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

What other testing are you having done?