Hello Heusty,
I'm interested in learning more about your situation, if you're willing to share. I have severe osteoporosis (-4.4, -4.5 to -5.2 numbers). When tested by an endocrinologist, my calcium was right at the top of the range and parathyroid numbers were 12 points above "standard range." My endocrinologist did not view this as Hyperparathyroidism. It's my understanding from experts that this result is bad because these numbers were both high at the same time.
Seeking a second opinion, I discussed these results with an endocrine surgeon and he retested me. Based on the results of all tests, he "offered" surgery for my "very mild Hyperparathyroidism" because of my severe osteoporosis. I have been struggling with the surgery decision and the decision to take anabolic drugs for a year while my bones likely get worse. While I am not comfortable having the surgery, I understand it improves bone density. I would still need to take anabolic drugs, which some believe are more effective than having the surgery. So confusing and scary. I'm about to throw in the towel and just take Evenity and hope for the best.
Thoughts?
I had parathyroid surgery with 1 adenoma removed. Too early to tell if osteo is improved. Dexa in 6 months. Osteo drugs will not help if you have hyperparathyroidism and there is no such thing as mild hyperparathyroidism you either have it ir you don't. The surgery is pretty easy. You need to go to a surgeon who does a lot of parathyroid surgeries. I flew to an expert Dr. Deva Boone in Phoenix, Arizona. She will also do a phone consult with you for around 425 dollars. Norman parathyroid center in Tampa, Fla have a website full of info. People go there from sll over the world. You can self refer to both if these Ces. Good luck!
Hello Heusty,
I'm interested in learning more about your situation, if you're willing to share. I have severe osteoporosis (-4.4, -4.5 to -5.2 numbers). When tested by an endocrinologist, my calcium was right at the top of the range and parathyroid numbers were 12 points above "standard range." My endocrinologist did not view this as Hyperparathyroidism. It's my understanding from experts that this result is bad because these numbers were both high at the same time.
Seeking a second opinion, I discussed these results with an endocrine surgeon and he retested me. Based on the results of all tests, he "offered" surgery for my "very mild Hyperparathyroidism" because of my severe osteoporosis. I have been struggling with the surgery decision and the decision to take anabolic drugs for a year while my bones likely get worse. While I am not comfortable having the surgery, I understand it improves bone density. I would still need to take anabolic drugs, which some believe are more effective than having the surgery. So confusing and scary. I'm about to throw in the towel and just take Evenity and hope for the best.
Thoughts?
Again, there is a poster on the Inspire osteoporosis forum who knows a lot about this and can also refer to a specialist. @kolika seems to be a good resource too!
I had parathyroid surgery with 1 adenoma removed. Too early to tell if osteo is improved. Dexa in 6 months. Osteo drugs will not help if you have hyperparathyroidism and there is no such thing as mild hyperparathyroidism you either have it ir you don't. The surgery is pretty easy. You need to go to a surgeon who does a lot of parathyroid surgeries. I flew to an expert Dr. Deva Boone in Phoenix, Arizona. She will also do a phone consult with you for around 425 dollars. Norman parathyroid center in Tampa, Fla have a website full of info. People go there from sll over the world. You can self refer to both if these Ces. Good luck!
Thank you, geedle12 for sharing your surgery experience and suggestions! I will follow up on them. In general did you feel any differently after surgery? Did you or are you taking any meds/supplements following your surgery? If so, what did they recommend? Sorry about all these questions but you no doubt have valuable info. I hope your Dexa shows great results and that you are feeling better following the surgery.
Hello Heusty,
I'm interested in learning more about your situation, if you're willing to share. I have severe osteoporosis (-4.4, -4.5 to -5.2 numbers). When tested by an endocrinologist, my calcium was right at the top of the range and parathyroid numbers were 12 points above "standard range." My endocrinologist did not view this as Hyperparathyroidism. It's my understanding from experts that this result is bad because these numbers were both high at the same time.
Seeking a second opinion, I discussed these results with an endocrine surgeon and he retested me. Based on the results of all tests, he "offered" surgery for my "very mild Hyperparathyroidism" because of my severe osteoporosis. I have been struggling with the surgery decision and the decision to take anabolic drugs for a year while my bones likely get worse. While I am not comfortable having the surgery, I understand it improves bone density. I would still need to take anabolic drugs, which some believe are more effective than having the surgery. So confusing and scary. I'm about to throw in the towel and just take Evenity and hope for the best.
Thoughts?
A short background on me. I’m 72, I’ve been on Prolia for 3 years and my scores have improved a bit. I was late on one shot and ended up with 3 compressed fractures of my spine. Very painful. My 24 hour urine calcium score was 503. It has always been quite high since it’s been tested. Blood calcium was 5.9. Both calcium and parathyroid levels are high My t scores are spine -3.1 hip -2.2. So my hip is actually not bad. Those were from 6 months ago. I have blood work to be done next week also. And an appointment with the surgeon in a few weeks. My endocrinologist suggested parathyroid surgery the last couple of years, but I’m still not sure.
Yes, if you have high calcium levels do not hesitate to get your parathyroid glands checked. My doctors let me go too long and I ended up having a small stroke!
I had a parathyroidectomy by Dr Norman in Tampa, Florida in 2008 and immediately felt better.
I had parathyroid surgery with 1 adenoma removed. Too early to tell if osteo is improved. Dexa in 6 months. Osteo drugs will not help if you have hyperparathyroidism and there is no such thing as mild hyperparathyroidism you either have it ir you don't. The surgery is pretty easy. You need to go to a surgeon who does a lot of parathyroid surgeries. I flew to an expert Dr. Deva Boone in Phoenix, Arizona. She will also do a phone consult with you for around 425 dollars. Norman parathyroid center in Tampa, Fla have a website full of info. People go there from sll over the world. You can self refer to both if these Ces. Good luck!
Yes, if you have high calcium levels do not hesitate to get your parathyroid glands checked. My doctors let me go too long and I ended up having a small stroke!
I had a parathyroidectomy by Dr Norman in Tampa, Florida in 2008 and immediately felt better.
My oncologist is sending me to the endocrinologist because my bones density is wreaking despite being on Zometa. Can you please tell me what is considered high blood calcium that he wants you to have surgery? Thank you.
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The Inspire forum for osteoporosis has a thread or two on this, It's great that your doctor caught this. How high was your calcium level?
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2 ReactionsHello Heusty,
I'm interested in learning more about your situation, if you're willing to share. I have severe osteoporosis (-4.4, -4.5 to -5.2 numbers). When tested by an endocrinologist, my calcium was right at the top of the range and parathyroid numbers were 12 points above "standard range." My endocrinologist did not view this as Hyperparathyroidism. It's my understanding from experts that this result is bad because these numbers were both high at the same time.
Seeking a second opinion, I discussed these results with an endocrine surgeon and he retested me. Based on the results of all tests, he "offered" surgery for my "very mild Hyperparathyroidism" because of my severe osteoporosis. I have been struggling with the surgery decision and the decision to take anabolic drugs for a year while my bones likely get worse. While I am not comfortable having the surgery, I understand it improves bone density. I would still need to take anabolic drugs, which some believe are more effective than having the surgery. So confusing and scary. I'm about to throw in the towel and just take Evenity and hope for the best.
Thoughts?
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Like -
Helpful -
Hug
1 ReactionI had parathyroid surgery with 1 adenoma removed. Too early to tell if osteo is improved. Dexa in 6 months. Osteo drugs will not help if you have hyperparathyroidism and there is no such thing as mild hyperparathyroidism you either have it ir you don't. The surgery is pretty easy. You need to go to a surgeon who does a lot of parathyroid surgeries. I flew to an expert Dr. Deva Boone in Phoenix, Arizona. She will also do a phone consult with you for around 425 dollars. Norman parathyroid center in Tampa, Fla have a website full of info. People go there from sll over the world. You can self refer to both if these Ces. Good luck!
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Helpful -
Hug
3 ReactionsAgain, there is a poster on the Inspire osteoporosis forum who knows a lot about this and can also refer to a specialist. @kolika seems to be a good resource too!
Thank you, geedle12 for sharing your surgery experience and suggestions! I will follow up on them. In general did you feel any differently after surgery? Did you or are you taking any meds/supplements following your surgery? If so, what did they recommend? Sorry about all these questions but you no doubt have valuable info. I hope your Dexa shows great results and that you are feeling better following the surgery.
A short background on me. I’m 72, I’ve been on Prolia for 3 years and my scores have improved a bit. I was late on one shot and ended up with 3 compressed fractures of my spine. Very painful. My 24 hour urine calcium score was 503. It has always been quite high since it’s been tested. Blood calcium was 5.9. Both calcium and parathyroid levels are high My t scores are spine -3.1 hip -2.2. So my hip is actually not bad. Those were from 6 months ago. I have blood work to be done next week also. And an appointment with the surgeon in a few weeks. My endocrinologist suggested parathyroid surgery the last couple of years, but I’m still not sure.
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Like -
Helpful -
Hug
3 ReactionsYes, if you have high calcium levels do not hesitate to get your parathyroid glands checked. My doctors let me go too long and I ended up having a small stroke!
I had a parathyroidectomy by Dr Norman in Tampa, Florida in 2008 and immediately felt better.
Do not wait!
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1 ReactionI went to Dr Norman in Tampa for my surgery in 2008.
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1 ReactionWow!! That's scary! So sorry to hear that and grateful for your post. So glad surgery helped. Do you recall your numbers at the time of surgery?
My oncologist is sending me to the endocrinologist because my bones density is wreaking despite being on Zometa. Can you please tell me what is considered high blood calcium that he wants you to have surgery? Thank you.