VA assistance: Anyone dealing with VA? Tips?

Posted by eott6913 @eott6913, Mar 31, 2018

Is anyone else dealing with the VA? How long does it usually take to get approved, see a Dr and get referred back to your oncologist?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@akjckc

My 72 year old husband has stage 4 squamous cell lung cancer. It is non operable and he has 3 new nodes. He has had 5 chemo (carbo/taxal) and 30 radiation treatments. We are currently in the ER after side effects from 2nd immunotherapy (durvalumab/imfinzi) treatment. They are running lots of tests to ensure no damage to organs. Scary stuff and a little disheartening. We are both hanging in there.

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Oh gosh, that is scary and disheartening. Just imagine that I'm bringing you a steaming cup of tea while you wait. It'll have to be a virtual tea, I'm afraid.

Members are talking about Imfinzi (durvalumab) in this discussion, in case it might have helpful info for you:
– A cold and Imfinzi immunotherapy https://connect.mayoclinic.org/discussion/a-cold-and-infinnzi/

I hope you can return home to your bed soon. Did your husband have reactions to the first infusion with durvalumab?

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It took us about 6 months of paperwork to get approved. Well worth it; lots of redtape but they have great resources!

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Can someone tell me what form is needed to get community care at the mayo clinic? People in the VA don't seem to know and keep telling me I cannot be seen there if though I know I can. Can someone please assist me?

Regards,
Nikole

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@nikole7272

Can someone tell me what form is needed to get community care at the mayo clinic? People in the VA don't seem to know and keep telling me I cannot be seen there if though I know I can. Can someone please assist me?

Regards,
Nikole

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Hi @nikole7272, Welcome to Mayo Connect. I'm sure this is frustrating, when all you want is to feel better, and LIVE.
Mayo Clinic and the Mayo Clinic Health System sites do participate in the VA Community Care program. (https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-expands-commitment-to-serving-veterans-by-participating-in-va-community-care-network-beginning-august-1-2020/)
Has your VA contact pointed you to form 10-10172, or are they telling you that you wouldn't be eligible? What's their reasoning? (https://www.va.gov/find-forms/about-form-10-10172/)

There are many good cancer centers across the US. Have you been diagnosed with lung cancer? How are you feeling? Do you feel that your cancer could be related to your service?

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