@jshdma wow. That is a long time with no relief for Oral LP - is it erosive? Meaning having large canker sore type inflammation all over your mouth. If that is the case, has any of your doctors suggested a high dose prednisone taper while beginning to take hydroxychloroquine?
LP comes in many forms with different medical names for each location. I have it almost everywhere. Optic LP is particularly dangerous as you might not have any symptoms that you’re having a flare so you can go blind before it is caught. I was lucky when I first had it in that I had about 5 minutes of total blindness one day and my eyes were in pain. The sores are actually in your eyes so you can’t see them.