I recently realized one of the big changes this illness has caused - my self-confidence is badly damaged. I’ve always been a leader, doer, expert in my professional field. All that is gone.
I told one of my long time friends recently “ the old Julie is gone. This is the new Julie”. Because I don’t complain, they don’t understand. And maybe they don’t want to see what could happen to any of them. Maybe they think I’m exaggerating.
But … not to further depress you, fisbo. In spite of this, life is pretty good. And I can always find someone with worse problems, right?
But it sounds like you are not at the acceptance stage, and that’s okay. Don’t give up - you don’t have to live in terrible pain. You just haven’t been given the right treatment yet.