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Increasingly Difficult to Accept Peripheral Neuropathy

Neuropathy | Last Active: Aug 10 12:43pm | Replies (233)

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@fisbo - We have all been there at one time or another but it is not a good place to be. I don't have any magic words or treatments that are going to cure your neuropathy. I'm no longer who I was either. I have difficulty walking and doing many other things that were fun when I was in my 50s and younger. Growing old with PN is the pits to say the least.

What helped me was to not focus on what I couldn't do anymore or the health issues I struggle with on a daily basis. Instead, I try to focus on things I specifically can do. One of those things for me was to examine my surroundings and find something everyday that I enjoy. Sometimes it's watching one of nature's little critters bouncing around looking for food and sometimes it's just helping a friend or neighbor.

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Replies to "@fisbo - We have all been there at one time or another but it is not..."

Es verdad que hay que mirar y descubrir nuevos intereses, sin nostalgia por los que perdimos ( algo poco fácil ) .Pero Fisbo nos habla de algo distinto: el dolor.Quienes tenemos la suerte de sufrir una neuropatía sin dolores,tal vez no lo comprendamos.Los comentarios de quienes lo sufren,hablan de dolores muy intensos.Y todos van en busca de mitigar ese padecimiento que creo que es casi permanente.Deseo que en este y todos los casos encuentren eso tan buscado o por lo menos un comienzo de alivio.No perder la esperanza de encontrar esa luz que buscamos.

@johnbishop you say that you cannot do the things you could do in your 50s? I am really struggling with balance and pain in my hands and feet. Would you mind if I ask you how long you had pn before you had trouble walking.

John, you are the mentor that I always want to read... I have followed you for quite a few years now, off and on..

My foot issues began with hot burning feet many years ago. Erythromyalgia was the initial diagnosis self made, as I couldn't find anything about my pain online.. Then eventually some folks started the Erythromyalgia Association and began discussing the problem so many of us were trying to deal with.. I am glad that it has finally been recognized, because it was really lonely always wondering what the heck was going on with us.

I've been having checkups for Diabetes for the past bunch of years, but my A1C has never been above normal.. I will get it checked once more now, but have always believed my problem was idiopathic.. due to spinal pain and inflammation.. Nobody ever cared what I thought.. then or now. I am about to be 83 years old this month! I have suffered a very long time, as many others have and do..

My feet are both very numb now, as are my ankles and it is moving up my legs, also my hands.. I know we all have to go sometime... but these seem to be my only health issues! What lies in store for me in the years ahead.....

I couldn’t agree with you more since my diagnosis which by the way it took several years things have changed quite dramatically. It does become increasingly difficult even with my British stiff upper lip in full swing however I absolutely agree with your comment on don’t focus on what you can’t do focus on what you can. One of the great joys in my life is a daily visit to the gym where I do aqua fitness once in the water and with the aid of the buoyancy of the water it is one of my great joys I can move run do all the things that I couldn’t do Yes I admit when I arranged to meet friends I have to carefully consider where to park the car how far it is to walk and to be sure I don’t become overtired. I have yet to use a cane even though my doctor has told me it will be far more painful to your body than your pride if you fall I will get there with it but just not yet.

Absolutely spot-on, my great passion is to go to the gym daily and do Aqua aerobics. It’s the one place where I can move as I want as fast as hard as I want and the cold water just invigorates so yes you’re absolutely right. Don’t focus on what you can’t look at what you can thank you