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Increasing unrelenting pain - PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Oct 22, 2022 | Replies (32)
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@elizabethjoan

Thanks for your reply. I agree with your thought that my rheumatologist is too rigid. Unfortunately there are no others within 500 km so I have to stick with him. My Family doctor is wonderful and I will be seeing her asap. I am even beginning to doubt my diagnosis as this pain I have now has not moved at LL. It is in my groin and right leg and is increasing to the point where I am truly unable to weight bare with confidence, walk or sleep.

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Replies to "Thanks for your reply. I agree with your thought that my rheumatologist is too rigid. Unfortunately..."
ldingwall88 | @ldingwall88 | Oct 12, 2022

I completely understand: at my worst point, I was unable to walk without the use of my 88-yr-old mother's walker. It was agony. I'm not sure that you can know for sure if the diagnosis is correct unless/until you try a higher dose of prednisone. They started me at 20mg which did nothing at all to touch the pain; only when they bumped me up to 40mg did it resolve--and it disappeared literally within hours. It was like a miracle.

Do you by any chance have a neurologist within reasonable distance? My neurologist (whom I was initially seeing for thunderclap headache) also treats PMR because of its connection to GCA. She's very knowledgable about it and has gotten me through the worst. If you have access to a neurologist, it might be worth a visit. My neuro is over an hour away, but it's worth it. You might also find that you could see a neuro a few times and they could advise your GP on treatment. I hope you find a good solution soon and that your pain resolves quickly.

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