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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)

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@detc

I’m so sorry to hear about the severity of your neuropathy. I also presented with bilateral neuropathy after my first Moderna booster. I was extremely worried about what was happening to me. I had the great fortune of finding a wonderful neurologist in Cleveland who had seen several patients with the same problem after vaccination. Hearing that made me feel less alone. She could only say that there was “high suspicion” of vaccine induced neuropathy. Obviously, it can’t be proven. She was open to the possibility especially after seeing a photo of my arm after my first shot. I had a rash on almost the whole upper part of my arm a week post shot. She prescribed Gabapentin to help with the discomfort and for me, it was effective. The other thing that she told me was that she thought that this type of neuropathy could possibly heal. Regeneration is very slow when it does happen. I am so thrilled to say that after 9 months, I am just now trying to completely stop the medication and am able to return to walking 3 miles a day and hiking. When this started, I could barely walk from the bedroom to the kitchen. Incredibly blessed and I hope this gives you and others in this situation some hopeful, positive thoughts. I wish you the best.

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Replies to "I’m so sorry to hear about the severity of your neuropathy. I also presented with bilateral..."

That is truly encouraging. I am so happy for you!

Is your doctor seeing new out-of-state patients? I can't seem to find a doctor that believes the vaccine is to blame. If your doctor is seeing new OOS patients, I'd love to get her name.

I fall back on the theory of Occam's Razor. If it sounds like a duck, walks like a duck, and looks like a duck ... it's probably a duck.