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No diagnosis and the fear of uncertainty.
Just Want to Talk | Last Active: Nov 24, 2022 | Replies (14)Comment receiving replies
@lidiana I have multiple health issues, starting all the way back to 1988 with a diagnosis of Systemic Lupus. But that diagnosis came at the end of many months of testing, starting with basic bloodwork, then the next test was based on what they found. There were specialized tests run, skin biopsies, remedies to deal with immediate symptoms, etc. It wasn't easy. And for years, some of the symptoms I manifested were attributed to the lupus.
Eventually, with advancements in medicine, and over the course of literally decades, a series of doctors [I had wandering feet and moved a lot!] other possible conditions were brought up. That is how we discovered my ultra-rare kidney disease, and my current blood cancer. But, none of this was a one-shot thing. It took a lot of investigation, ruling out potential concerns, and all. Apparently, my immune system is an overachiever, like I am in general.
How did/do I cope? Relying on trusted medical sources [not Dr. Google!], reaching out for information when necessary. Trusting those on my medical team that I have picked to be my care providers. Yes, I have changed doctors when I felt it was in my best interest. Believing in myself.
Ginger
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...so yu must have had a lot of stress dealing with all this Ginger... looking back I could deal with a lot more when I was younger but as ageing, will be 79 in 2 days, I find I do not have the strength or resilience I once had... and as the new illnesses present themselves the list grows longer and I can almost see the dr or nurse sigh as I tell them of even more.... I prefer saying Internet Searches than Dr.Google, but know what you mean but when I did not have a doctor for 2 yrs as left town i did search with symptoms mainly to find out; gosh I have these symptoms, should I phone GoodDrs., or go to Emerge, try a home remedy? Now its either information overload or six web sites with six different results for same symptoms but with covid and the long wait for drs. it is tempting... i waited one year for ent and as I said on here he talked about his problems not mine, and thats true. I really like this site as moderators fair , also some have had same illnesses, and it is reassuring to hear how others have coped, yet I am still having problems handling my pains and symptoms... and the slowness of waiting 2 months for a referral and 4 months for an appointment, but know i am not alone....still, it is hard dealing with it all night and day; again thanks for sharing your personal story. j.