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DiscussionNo diagnosis and the fear of uncertainty.
Just Want to Talk | Last Active: Nov 24, 2022 | Replies (14)Comment receiving replies
Replies to "Thank you so much for sharing your thoughts. I never asked for medical advice on my..."
@lidiana I have multiple health issues, starting all the way back to 1988 with a diagnosis of Systemic Lupus. But that diagnosis came at the end of many months of testing, starting with basic bloodwork, then the next test was based on what they found. There were specialized tests run, skin biopsies, remedies to deal with immediate symptoms, etc. It wasn't easy. And for years, some of the symptoms I manifested were attributed to the lupus.
Eventually, with advancements in medicine, and over the course of literally decades, a series of doctors [I had wandering feet and moved a lot!] other possible conditions were brought up. That is how we discovered my ultra-rare kidney disease, and my current blood cancer. But, none of this was a one-shot thing. It took a lot of investigation, ruling out potential concerns, and all. Apparently, my immune system is an overachiever, like I am in general.
How did/do I cope? Relying on trusted medical sources [not Dr. Google!], reaching out for information when necessary. Trusting those on my medical team that I have picked to be my care providers. Yes, I have changed doctors when I felt it was in my best interest. Believing in myself.
Ginger