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@athomason

I have also developed an autoimmune disorder post Covid. So now if I am exposed to anything, even getting Botox, I will have all the post Covid symptoms all over again. My neurologist recommended taking a small round of steroids when this happens for now. We just have to try to live with it. It is hard for me as I am a runner and want to exercise daily. I know now to get my heart symptoms under control then can workout. My heart rate will be high sometimes and I will have palpitations but I push through. I have to balance how much I can do due to PEM.

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Replies to "I have also developed an autoimmune disorder post Covid. So now if I am exposed to..."

Do you mind me asking what autoimmune condition you were diagnosed with?

I'm very sorry to hear this, and I understand what you mean about learning to live with it. I am being very careful now about what I introduce into my system -- like very, very careful. I know what foods work well for me (don't cause inflammation) and I can feel when I am overextending myself in any way. And I certainly am not going to introduce any boosters or other immunizations at this time. I know my immune system has been working so so hard to recover from Covid and from long-haulers, and my personal feeling/experience is that treating it ever so carefully, like a newborn baby, has given me good results. It does take time though, and it is a slow process. This is not a normal illness where someone can bounce back after a week or two, or even a month or two, and I know how incredibly frustrating that is.

Not to scare you but just to let you know... I have a good friend in heart failure right now. He's in his early 40's, very much in shape, and is also an avid runner. He was running 40-50 miles per week, prior to getting vaccinated. And unfortunately he is one of the young men who had a really adverse reaction to the Pfizer vaccination. So, he's learning to "live" with heart failure, because no one has answers for him, and running is still what brings him joy (so he manages).